Not being in intense
neurological pain this year on vacation was a gift. I was wishing, hoping, and praying before our
trip that this year we could please just enjoy ourselves--that I would not be relegated to bed most of
the trip or suffering and trying to smile despite how horrible I felt. When you
are in that much pain, time goes so slowly and this vacation went by quickly.
We settled into a routine to help manage my fatigue and sun sensitivity. We could do an activity in the morning and late afternoon, but in the middle of the day I needed to rest and stay inside out of the sun.
We settled into a routine to help manage my fatigue and sun sensitivity. We could do an activity in the morning and late afternoon, but in the middle of the day I needed to rest and stay inside out of the sun.
I truly felt like a kid
again. Some of my favorite parts of our
time away were just playing pool frisbee with our friends and barbecuing in the evenings. Yes, we
were acting half our age even though we are all in our 30s. And I found myself laughing again, well
really I am a giggler, something that I had been able to do little of just a
year or even 6 months ago.

