Tuesday, March 1, 2016

My Pregnancy and Sjogrens

I didn’t have a chance to write much about my pregnancy and I wish that I had.  At the time, it seemed like things couldn’t get any busier with my constant array of medical appointments, moving, and getting ready for baby.  What I’ve come to realize is that having a baby is even busier than having three to four doctors’ appointments per week and managing a chronic health condition, but that’s a whole other discussion.   Pregnancy and autoimmune diseases are an extremely important topic especially because the majority of people who suffer from them are women.

It used to be that many women with autoimmune diseases were told to forgo pregnancy.  This is no longer true for many of us, which is a welcome change. (I do realize that getting pregnant can be a difficulty for autoimmune disease patients, but I’m going to stick with my experience with the pregnancy part for now.) With careful pre-pregnancy planning and monitoring during pregnancy, it’s possible for things to go well and to be blessed with a healthy baby.  Now of course that doesn’t mean the pregnancies are easy and without risk, but a good outcome is no longer a rarity. In fact, a study from last year, the largest of it’s kind found that pregnancy is safer for lupus patients than originally thought with a 81 percent having what is medically called an “uncomplicated pregnancy”.  Click here.

For me, pregnancy was a bit of double-edged sword.  In order to make sure my baby was healthy, I had weekly fetal echo cardiograms throughout most of the 2nd and 3rd trimester.  These were critical to determine if the baby’s heart was developing correctly and did not develop “fetal heart block”.  Heart block can be a consequence of the SSA/SSB antibodies found in some Sjogren’s and Lupus patients.   I also saw my high-risk OB quite often in addition to my regular array of autoimmune appointments including rheumatology, rheumatology infusions, and ophthalmology to name a few.  To make things a little more tricky, my OB and pediatric cardiologist  (she monitored my baby’s heart) were at least an hour away so I would wiped out by the time I got back home.

The good news was that my Sjogren’s was much better while I was pregnant.  Yes, I felt the best I had in years.  My fatigue was less intense and I had more energy.  My neurological Sjogren’s symptoms were more in check and we were able to lessen the “pregnancy safe” medical treatments I needed.   Dare I say I felt pretty normal.  And while, many pregnancy women complain about brain fog for me it was also the opposite.  I felt mentally sharp again.   I “knew” this new state was probably temporary, but I secretly hoped it would last well past my baby being born.  I imagined going back to work part-time and excelling at both home, career, and motherhood and managing my health. (While material for another post, this was definitely too ambitious).

And I am not alone in having this experience.  Some autoimmune diseases are thought to improve during pregnancy.  My doctors who are Sjogren’s experts told me there was a chance that I would feel better based on their clinical experience.  Some describe pregnancy as a natural imuno-suppressive, which can be a good thing for those of us with over-active immune systems that go around attacking the wrong things.

This raises a number of big questions, which I am not nearly smart enough to answer.  What exactly happens during pregnancy that puts some autoimmune diseases into a less or more active state?  What role do hormones play in this process? And more importantly is it possible to replicate some of this without pregnancy?  I’m hoping that some scientists and doctors might already be tackling these questions.  If you're familiar with anyone doing work here please let me know.  I do wonder whether some of the mystery around pregnancy and autoimmune conditions may be part of the the key to better treatments in the future. 

I would love to hear from other autoimmune moms who were diagnosed prior to getting pregnant. I haven't been able to find very many.  What was your experience with autoimmune disease and pregnancy?



26 comments:

  1. I just wanted to thank you for your blog post. I had three miscarriages, then two successful pregnancies, all before I was diagnosed, so I am not of help there. However, I find it fascinating and even hopeful that you did better during pregnancy. You may be on to something!

    ReplyDelete
    Replies
    1. Thank you for reading and sharing your experience. It's definitely so important for those of us who are autoimmune moms whether diagnosed before or after pregnancy to connect. It's a different journey and I don't know any other moms with autoimmune disease in my community. Stay in touch.

      Delete
    2. i am ERIC BRUNT by name. Greetings to every one that is reading this testimony. I have been rejected by my wife after three(3) years of marriage just because another Man had a spell on her and she left me and the kid to suffer. one day when i was reading through the web, i saw a post on how this spell caster on this address AKHERETEMPLE@gmail.com have help a woman to get back her husband and i gave him a reply to his address and he told me that a man had a spell on my wife and he told me that he will help me and after 3 days that i will have my wife back. i believed him and today i am glad to let you all know that this spell caster have the power to bring lovers back. because i am now happy with my wife. Thanks for helping me Dr Akhere contact him on email: AKHERETEMPLE@gmail.com
      or
      call/whatsapp:+2349057261346




      i am ERIC BRUNT by name. Greetings to every one that is reading this testimony. I have been rejected by my wife after three(3) years of marriage just because another Man had a spell on her and she left me and the kid to suffer. one day when i was reading through the web, i saw a post on how this spell caster on this address AKHERETEMPLE@gmail.com have help a woman to get back her husband and i gave him a reply to his address and he told me that a man had a spell on my wife and he told me that he will help me and after 3 days that i will have my wife back. i believed him and today i am glad to let you all know that this spell caster have the power to bring lovers back. because i am now happy with my wife. Thanks for helping me Dr Akhere contact him on email: AKHERETEMPLE@gmail.com
      or
      call/whatsapp:+2349057261346

      Delete
    3. i am ERIC BRUNT by name. Greetings to every one that is reading this testimony. I have been rejected by my wife after three(3) years of marriage just because another Man had a spell on her and she left me and the kid to suffer. one day when i was reading through the web, i saw a post on how this spell caster on this address AKHERETEMPLE@gmail.com have help a woman to get back her husband and i gave him a reply to his address and he told me that a man had a spell on my wife and he told me that he will help me and after 3 days that i will have my wife back. i believed him and today i am glad to let you all know that this spell caster have the power to bring lovers back. because i am now happy with my wife. Thanks for helping me Dr Akhere contact him on email: AKHERETEMPLE@gmail.com
      or
      call/whatsapp:+2349057261346




      i am ERIC BRUNT by name. Greetings to every one that is reading this testimony. I have been rejected by my wife after three(3) years of marriage just because another Man had a spell on her and she left me and the kid to suffer. one day when i was reading through the web, i saw a post on how this spell caster on this address AKHERETEMPLE@gmail.com have help a woman to get back her husband and i gave him a reply to his address and he told me that a man had a spell on my wife and he told me that he will help me and after 3 days that i will have my wife back. i believed him and today i am glad to let you all know that this spell caster have the power to bring lovers back. because i am now happy with my wife. Thanks for helping me Dr Akhere contact him on email: AKHERETEMPLE@gmail.com
      or
      call/whatsapp:+2349057261346

      Delete
  2. I was diagnosed with Sjogren's Syndrome prior to getting pregnant. I was diagnosed at 33 and had my first child at 37. I'm currently 11 weeks pregnant with my second child. My first pregnancy went very well. I was monitored by a high risk OB. So far so good with this one. I definitely felt better with my first pregnancy and my Sjogren's symptoms are also better now too, but I'm pretty exhausted. It's likely because I have a toddler to take care of and can't rest as much as I'd like. Pregnancy is exhausting! I would also love to know if there's a way to replicate the positive effects of pregnancy on autoimmune diseases. It would feel like a cure! Thanks for your post!

    ReplyDelete
    Replies
    1. Hello I know quite a bit about sjogrens as I am 33 and have had it since 2009 after my tonsils came out too late n life. Progesterone plays a huge role in feeling better in many cases. Estrogen before cycles make us flare. or me anyhow. I was prescribed the mini pill progesterone only pill and it made me not flare! but. my boobs hurt way worse all the time, not just before my cycle for a week or two, i have cystic boobs however that swell, so i stopped it because it was heated fluid and unbearable. I am only 5 weeks and petrified i am normally ana ssb positive on occasion ana has come back negative. this is my first I am trying to keep. Lord only knows what a ride i am in for hopefully i find good doctors.

      Delete
  3. Hi! I have Sjogrens and was diagnosed after the birth of my first child (although I reckon I had it for many years looking back!) Went on to have another baby 20 months later. So I have had 2 pregnancies, but only knew about the Sjogrens for one of them. I also was diagnosed with antiphospholipid syndrome and had to take Aspirin. During my first pregnancy I felt great and looking back I realise it is because my Sjogrens was in remission. I think that our bodies "dampen down" our immune systems to stop us rejecting the baby. During my second pregnancy I becAme very ill in the third trimester, became septic. Then I had an emergency C Section at 38 weeks as there was no fluid around the baby, then I had a bad postpartum haemorrhage and had to have a blood transfusion. The baby was quite sick too and was in NICU for 2 weeks. Thankfully she is now 5 months old and thriving. So while my sjogrens went into remission both times, I found the second pregnancy very worrying.

    ReplyDelete
  4. Hi! So glad you are posting again :) As a 33 year old, diagnosed with Sjögren last year i can relate to lots of the situations you have been describing in your posts. I have not had any pregnancy, but one year before getting my Sjögren diagnosis, i was diagnosed out of the blue with PCOS (polycystic ovarian sdr). I have also had lots of problems with reccurent labial herpes infections. So, i am sure there is a connection with a hormonal imbalance, but also with viral/bacterial infections in addition to a certain genetical predisposition. It really feels frustrating that my reumathologist doesn´t seem to care about these things. I have been reading some articles, relating some of the MALT-lymphomas (which we are at risk for) with bacterial infections, one of the most known being the MALT-lymphoma of the stomach which is being caused by the H. pylori. I feel like scientists are not trying to find the root of the problem, but simply trying to treat the effects (somehow like when you are having pneumonia, instead of getting antibiotics you would only get something to cool down your feber!).

    Greetings from Sweden!

    ReplyDelete
  5. It is great to hear people pursuing their dream and becoming successful.
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    ReplyDelete
  6. Not sure what i can share.
    I have sjogrens as well, combined with other auto immunne issues.
    I have 3 children, 2 with heartblick-one is complete.
    Just fyi in my 40's ive had 2 hormonal cancers...breast and ovarian, needless to say i cannot take hormones at all apparently.
    Im still trying to find a way to feel "great" and hormones play a key role.
    Im sure it is all linked to these auto immune diseases.
    On the outside, you would never know what havoc my body has had to endure.
    As far as my heartblock children all is well and weve participated in a research registry for 18 years with Dr. JILL Buyon (head of rheumo at NYU).
    its very interesting to learn about others...keep sharing@

    ReplyDelete
  7. Venous thromboembolism (VTE) is the leading cause of maternal death in developed countries. The pregnant and postpartum .

    http://www.bluesupplement.com/womens-multivitamin/

    ReplyDelete
  8. The  Sjogren’s Syndrome Herbal Treatment  has proven that all these Sjogren's disorder issue can be treat between 30 days to 3 months dependent upon every case. All cases have achieved incredible change and 90% of them get great recuperation from Sjogren's disorder issues.

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  9. I am bold enough among many others to state that there is now a potent cure to this sickness but many are unaware of it. I discovered that I was infected with the virus 3 months ago, after a medical check-up. My doctor told me and I was shocked, confused and felt like my world has crumbled. I was dying slowly due to the announcement of my medical practitioner but he assured me that I could leave a normal life if I took my medications (as there was no medically known cure to Herpes). I went from churches to churches but soon found that my case needed urgent attention as I was growing lean due to fear of dying anytime soon. In a bid to look for a lasting solution to my predicament, I sought for solutions from the herbal world. I went online and searched for every powerful trado-medical practitioner that I could severe, cos I heard that the African Herbs had a cure to the Herpes syndrome. It was after a little time searching the web that I came across one Dr Itua(A powerful African Herbal Doctor), who offered to help me at a monetary fee. I had to comply as this was my final bus-stop to receiving a perfect healing. My last resolve was to take my life by myself, should this plan fail. At last it worked out well. He gave me some steps to follow and I meticulously carried out all his instructions. Last month, to be precise, I went back to the hospital to conduct another test and to my amazement, the results showed that negative,Dr Itua Can As Well Cure The Following Desease…Cancer,Hiv,Herpes, Hepatitis B,Liver Inflammatory,Diabetis,Fribroid,,Non Hodgkin Lymphoma,Skin Cancer,Uterine Cancer,Prostate Cancer Dercum,Infertility,fibromyalgia,Get Your Ex Back,Als,SYPHILLIS,Genetic disease,Epilepsy, Parkinson's disease..You can free yourself of this Herpes virus by consulting this great African Herbal Doctor via this e-mail: drituaherbalcenter@gmail.com or call and whatsapp him on +2348149277967 He will help you and his herb medication is sure. he has the cure on all disease .You can talk to me on INSTAGRAM..tashamoore219....

    ReplyDelete
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  11. I got cured from PCOS and got pregnant after 8 years of marriage using Dr. Ogbes herbs. Contact Dr. Ogbes today on Landofanswer@hotmail.com or write him here on face book Pregnancy Care. i got pregnant after using the herbal for 21 days. or WhatsApp +2347050270227

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  12. Dr Itua cure my HIV, I have been a ARV Consumption for 10 years. i have been in pains until i came across Dr Itua on blogs site.I emailed him about my details of my HIV and my location i explained every thing to him and he told me that there is nothing to be scared of that he will cured me, he gave me guarantee,He ask me to pay for items fees so when i'm cured I will show gratitude I did and giving testimony of his healing herbs is what I'm going to do for the rest of you out there having HIV and other disease can see the good work of Dr Itua.I received his herbal medicine through EMS Courier service who delivered to my post office within 5 working days.Dr Itua is an honest man and I appreciate him for his good work.My GrandMa called him to appreciate him and rest of my friends did too,Is a joy to me that I'm free of taking Pills and having that fat belle is a nightmare.you will understand what i'm talking about if you have same problem I was having then not now though.I'm free and healthy Big Thanks To Dr Itua Herbal Center.I have his calendar too that he recently sent me,He Cure all kind disease Like,Cancer,Herpes,Fibromyalgia,Hiv,Hepatitis B,Liver/Kidney Inflamatory,Epilepsy,Infertility,Fibroid,Diabetes,Dercum,Copd ,and also Bring back Ex Lover Back..Here his Contact .drituaherbalcenter@gmail.com Or Whats_app Number +2348149277967

    ReplyDelete
  13. i have been trying to get pregnant for over 5 years now. My husband and I have been seeing a fertility specialist. We have done our best but no luck. My husband has a sperm count which goes up and down,the doctor has recommended him taking the Proceed supplement which he is doing over 3 years with no change in the situation .. I was so confused until i contacted this powerful spell caster Dr. Ebhota online who I saw a number of testimonies of how he has help so many of people so I sent Dr. Ebhota a mail and I told him all my sorrows and pain he replied me and ask me not to cry any more that he will help, he sent me some instructions and caution, Dr. Ebhota cast the spell and I bought some items to complete the spell casting and he told me to meet with my husband.. Within 3weeks of doing this I felt some changes and I went to my doctor and it was confirm that I was pregnant,i promises Dr Ebhota to share his testimony for three years,it has been over a year and four months now,i have been testifying this great testimonies for my life and my husband,for any one how need his help herb potion should contact him,on his Email [ drebhota123456@gmail.com ] or call him on [ +2349035324155 ]

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  14. During my time I was diagnosed of Herpes and HIV/Aids I was advised not to speak to certain people about my Health “orthodox side” because they’re all lying shills and sociopaths or not take seriously scientific information on HIV because according to the denialists it’s all propaganda from the “AIDS establishment”. I decided to do some search, Rethinking AIDS and Herpes denialism in general, it caused a wave of attacks against Herbal Medicine and medicated drugs, anger, disbelief and insults with some members even alluding to the fact that I was the leader of Rethinking AIDS at the time. Of course I wasn’t and I always reminded them that I was and independent even if I was positive of those diseases. I come across a search on how Dr Itua cure people suffering from, Herpes, HIV/Aids, Hepatitis, Cancer, Epilepsy,Copd,Parkinson,Ledder Diseases, then I decided to give a try although i have had a lot of stories about Nigeria scam so I was scared of it at first then I had a second thought telling me to give a try so i finally order for it and it was sent to me through courier service and I take it for two weeks and I was healed, I still find it difficult today to be real I'm living for a year now without outbreak or taking ARV Drugs, I'm supporting Dr Itua Herbal Center and also promoting his herbal medicine online for people suffering from any kind of disease to contact him on Email...drituaherbalcenter@gmail.com Or Whatsapp Number On...+2348149277967. At this point of view regarding HIV/AIDS, HERPES, GENITALS, WART, COLD SORE. You can say I was very involved with the movement; I spoke on radio shows about Dr Itua, filmed my own YouTube videos, wrote my own articles about Dr Itua and attempted to inform every person I could about this information. Thank You.

    ReplyDelete
  15. With the help of a man called Dr.Ogbes I was able to get pregnant. i'm 56years of age, it was really difficult for me to pregnant though my husband loves me but it was really hurting me not having my own child but after many years I came across Dr.Ogbes whose email address is Landofanswer@hotmail.com or you reach him direct on his cell phone number +2347050270227 he told me he is going to send me a Herbs for me to drink, and will fall pregnant a week after drinking the Herbs i'm 7months pregnant now and also I will like to advice everyone looking for help to get pregnant to contact this very man via his email address at Landofanswer@hotmail.com or call him on his cell phone number +2347050270227.

    ReplyDelete

  16. I’m from USA am here to give my testimony about Dr Robinson who helped me cure my HERPES (HSV), i want to inform the public how i was cured from (HERPES SIMPLEX VIRUS), i visited different hospital but they gave me list of drugs like Famvir, Zovirax, and Valtrex which is very expensive to treat the symptoms and never cured me. Three months ago a friend suggested that I try herbal medicine; from a very powerful herbal doctor called (Dr.Robinson) I looked up his blog on the internet site and indeed he have had immense success with his product. There were lot of persons posting their testimony about how he cured them. when i contacted him he gave me hope and send a Herbal medicine to me that i took and it seriously worked for me, my HERPES result just came out negative. (Robinson.buckler (@ yahoo). com 🙂🙂🙂🙂🙂🙂🙂🙂🙂🙂🙂🙂🙂🙂🙂 I must admit ( ( Robinson.buckler) ) is really a genuine man when it comes to getting an ex lover back.....................................

    ReplyDelete
  17. Hiv disease for the last 3 years and had pain hard to eat and cough are nightmares,especially the first year At this stage, the immune system is severely weakened, and the risk of contracting opportunistic infections is much greater. However, not everyone with HIV will go on to develop AIDS. The earlier you receive treatment, the better your outcome will be.I started taking ARV to avoid early death but I had faith in God that i would be healed someday.As a Hiv patent we are advise to be taking antiretroviral treatments to reduce our chance of transmitting the virus to others , few weeks ago i came on search on the internet if i could get any information on Hiv treatment with herbal medicine, on my search i saw a testimony of someone who has been healed from Hiv her name was Achima Abelard and other Herpes Virus patent Tasha Moore also giving testimony about this same man,Called Dr Itua Herbal Center.I was moved by the testimony and i contacted him by his Email.drituaherbalcenter@gmail.com OR info@drituaherbalcenter.com. We chatted and he send me a bottle of herbal medicine I drank it as he instructed me to.After drinking it he ask me to go for a test that how i ended my suffering life of Hiv patent,I'm cured and free of Arv Pills.I'm forever grateful to him Drituaherbalcenter.Here his contact Number +2348149277967...He assure me he can cure the following disease..Hiv,Cancer,Herpes Virus,Hpv,Pile,Weak Erection,Lyme Disease,Epilepsy,Glaucoma.,Brain Tumor,psoriasis, Cataracts,Macular degeneration,Cardiovascular disease,Lung disease.Enlarged prostate,Osteoporosis.Alzheimer's disease,
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    ReplyDelete
  18. i am ERIC BRUNT by name. Greetings to every one that is reading this testimony. I have been rejected by my wife after three(3) years of marriage just because another Man had a spell on her and she left me and the kid to suffer. one day when i was reading through the web, i saw a post on how this spell caster on this address AKHERETEMPLE@gmail.com have help a woman to get back her husband and i gave him a reply to his address and he told me that a man had a spell on my wife and he told me that he will help me and after 3 days that i will have my wife back. i believed him and today i am glad to let you all know that this spell caster have the power to bring lovers back. because i am now happy with my wife. Thanks for helping me Dr Akhere contact him on email: AKHERETEMPLE@gmail.com
    or
    call/whatsapp:+2349057261346




    i am ERIC BRUNT by name. Greetings to every one that is reading this testimony. I have been rejected by my wife after three(3) years of marriage just because another Man had a spell on her and she left me and the kid to suffer. one day when i was reading through the web, i saw a post on how this spell caster on this address AKHERETEMPLE@gmail.com have help a woman to get back her husband and i gave him a reply to his address and he told me that a man had a spell on my wife and he told me that he will help me and after 3 days that i will have my wife back. i believed him and today i am glad to let you all know that this spell caster have the power to bring lovers back. because i am now happy with my wife. Thanks for helping me Dr Akhere contact him on email: AKHERETEMPLE@gmail.com
    or
    call/whatsapp:+2349057261346

    ReplyDelete
  19. I had my first outbreaks and I was tested back in 2010 for both HSV-1 and
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    out my husband was cheating, so I decided to do a retest on all STDs
    including HSV-1 and HSV-2, only difference is that this time I went to a
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    ReplyDelete
  20. I'm 57 years old and female. I was diagnosed a couple of years ago with COPD and I was beyond scared! My lung function test indicated 49% capacity. After having had flu a year ago, the shortness of breath, coughing and chest pains continued even after being treated with antibiotics. I've been smoking two packs a day for 36 years. Being born without a sternum caused my ribs to be curled in just one inch away from my spine, resulting to underdeveloped lungs. At age 34 I had surgery and it was fixed. Unfortunately my smoking just caused more damage to my already under developed lungs. The problem was having is that I enjoy smoking and don't want to give up! Have tried twice before and nearly went crazy and don't want to go through that again. I saw the fear in my husband and children's eyes when I told them about my condition then they start to find solution on their own to help my condition.I am an 57 now who was diagnose COPD emphysema which I know was from my years of smoking. I started smoking in school when smoking was socially acceptable. I remember when smoking was permitted in hospitals. It was not known then how dangerous cigarettes were for us, and it seemed everybody smoked but i was able to get rid of my COPD lung condition through the help of  Dr Akhigbe   total cure herbal medicine. my husband saw his testimony on the internet he used his powerful medicine to cured different diseases. we contacted his email   [drrealakhigbe@gmail.com}   He has the right herbal formula to help you get rid and repair any lung conditions and others diseases, will cure you totally and permanently with his natural organic herbs,We received the medicine through courier delivery service. I wish anybody who starts smoking at a young age would realize what will eventually happen to their bodies if they continue that vile habit throughout their life.
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    God bless you Dr Akhigbe for your good hand work on my life.

    ReplyDelete
  21. I Want to say thanks to God Almighty for giving me a second chance of life
    through @Dr_ben52 who have helped me with his herbal remedies to cure
    my HPV. When I
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    Seeing is
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    contact @Dr_ben52 for his Herbal Remedy. Link him up on IG: @Dr_ben52 or via Email:(Drbenspelltemple02@gmail.com)or whatsapp him(+2348050781362)....

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  22. this is unbelievable i have be suffering for Herpes Infection Dr.Edidia who helped me in my life, i want to inform the public how i was cured from Herpes Infection by Dr.Edidia,i visited different hospital but they gave me list of drugs like Famvir, Zovirax, and Valtrex which is very expensive to treat the symptoms disease and never cured me. I was browsing through the Internet searching for remedy on Herpes infection and i saw so many blogs comment of people talking about how Dr Edidia cured them.so i contacted him he gave me hope and send a Herbal medicine to me that i took and it seriously worked for me,experiencing changes all over me as the great Dr.Edidia assured me that i have been cured,after some time i went to the doctor to confirmed if i have be finally healed behold it was TRUE,my Herpes infection out negative.my prayer for Dr Edidia am cured you can also get your self and friends i will advise if you have any sickness at all you can contact now: dredidiaherbalhome@gmail.com or cell whatsapp number:+2349074505296 or by his facebook page:https://www.facebook.com/Dr-Edidia-Herbal-Cure-105172711331669
    my private email: vinnyjude02@gmail.com

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