tag:blogger.com,1999:blog-5508107958494001609.post2266644784919822950..comments2024-03-26T03:31:49.372-04:00Comments on AutoimmuneGal: When Friends Dismiss Your Autoimmune DiseaseAutoimmuneGalhttp://www.blogger.com/profile/11917880603070744451noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-5508107958494001609.post-50615864239180474672016-03-06T01:36:18.496-05:002016-03-06T01:36:18.496-05:00Oh Rose I am so sorry. You are not alone. You have...Oh Rose I am so sorry. You are not alone. You have the voice of so many people who are severely sick and know exactly what you are dealing with on a daily basis. I am sorry for your husband's lack of empathy and understanding of your very real disease. God sees your struggle and knows what it takes to wake up and be you everyday. I said a prayer for you.A fellow strugglerhttps://www.blogger.com/profile/00077831091804481894noreply@blogger.comtag:blogger.com,1999:blog-5508107958494001609.post-9939835083820078092016-03-05T21:40:53.351-05:002016-03-05T21:40:53.351-05:00Oh Rose I am so sorry. You are not alone. You have...Oh Rose I am so sorry. You are not alone. You have the voice of so many people who are severely sick and know exactly what you are dealing with on a daily basis. I am sorry for your husband's lack of empathy and understanding of your very real disease. God sees your struggle and knows what it takes to wake up and be you everyday. I said a prayer for you.A fellow strugglerhttps://www.blogger.com/profile/00077831091804481894noreply@blogger.comtag:blogger.com,1999:blog-5508107958494001609.post-11935164766652164082015-04-30T22:06:47.441-04:002015-04-30T22:06:47.441-04:00I just this evening had a very hurtful discussion ...I just this evening had a very hurtful discussion with my husband. He emphatically insists that my Sjogren's, Lupus overlap, etc. could easily be cured, if I changed my diet and went to therapy. That the responsibility for being so sick the last 8 years rests squarely on my shoulders. That the pain and suffering I have endured and trauma it has caused our family are of my own doing. That I should just stop all my medication. <br /><br />I feel very alone. Rose Webernoreply@blogger.comtag:blogger.com,1999:blog-5508107958494001609.post-90578027407784977422013-10-22T16:58:42.054-04:002013-10-22T16:58:42.054-04:00My reply to nurses & others in the mefical pro...My reply to nurses & others in the mefical profession as well as lay people - If I knew the cause I would be a multi billionaire.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5508107958494001609.post-49157014231279969002012-07-11T00:08:29.139-04:002012-07-11T00:08:29.139-04:00Your girlfriend is so lucky to have you and your s...Your girlfriend is so lucky to have you and your support. And I am so sorry to hear how her friends treated her. It is unacceptable.<br /><br />It seems hard for some people to grasp that those of us with autoimmune disease have a multitude of limitations and health problems with which we have to contend. I too have problems with allergic reactions and food and this is another area where not everyone is the most understanding. It is important to try to teach friends and family about autoimmune disease, but they have to want to listen and to understand. I do feel particularly grateful to those people in my life who have been understanding and compassionate about my illness.AutoimmuneGalhttps://www.blogger.com/profile/11917880603070744451noreply@blogger.comtag:blogger.com,1999:blog-5508107958494001609.post-40209971157372476662012-07-04T07:01:59.499-04:002012-07-04T07:01:59.499-04:00That really sucks. I always get worried about my g...That really sucks. I always get worried about my girlfriend who has an autoimmune disease as she is often sick. People often dont understand why she is sick as well. Recently she was ill and an acquittance proceeded to basically publicly (among her group) shame her because she was unable to eat certain types of foods as they always trigger ill reactions.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5508107958494001609.post-10549061019659325402012-06-13T23:25:30.203-04:002012-06-13T23:25:30.203-04:00That is such a good point about when people try to...That is such a good point about when people try to research Sjogren's and all they come up with is dry eye and dry mouth when there are so many more symptoms and complications of the disease. I wish that we didn't have to convince people about our illness.AutoimmuneGalhttps://www.blogger.com/profile/11917880603070744451noreply@blogger.comtag:blogger.com,1999:blog-5508107958494001609.post-38937083763547587842012-06-10T12:37:33.415-04:002012-06-10T12:37:33.415-04:00I'm sorry for you. I'm sorry that you have...I'm sorry for you. I'm sorry that you have to live a bad situation.<br />I had not yet live this problem. But maybe it will happen one day.<br />One of my friend try to search for inf on Sjogren, maybe she was thinking to help me, to understand better, but all she find was that Sjogren was "dry eyes and dry month". And after that she thinks that the illness was not soo bad. It was hard to convince her that it was not so easy.Anonymousnoreply@blogger.com