tag:blogger.com,1999:blog-5508107958494001609.post1323841185506768083..comments2024-03-26T03:31:49.372-04:00Comments on AutoimmuneGal: Nursing Care As It Should BeAutoimmuneGalhttp://www.blogger.com/profile/11917880603070744451noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-5508107958494001609.post-79572169875539799272012-10-16T14:51:30.674-04:002012-10-16T14:51:30.674-04:00My good friend just spoke to me about finding a ne...My good friend just spoke to me about finding a new infusion center (she has MS), because the TV is gone, the nurses just ignored her "it's no fun anymore" and I support her move. It has been a good choice and what were they thinking?- cost cuts I guess but cuts the patients...sign of the times I suppose.Diane J Standifordhttps://www.blogger.com/profile/11862850657925658079noreply@blogger.comtag:blogger.com,1999:blog-5508107958494001609.post-77540452842517902482012-10-09T17:11:26.634-04:002012-10-09T17:11:26.634-04:00So glad you enjoyed and you'll be writing a po...So glad you enjoyed and you'll be writing a post on some of those special healthcare providers. It can be hard to remember the positives when you have chronic illness, but it always inspires me!AutoimmuneGalhttps://www.blogger.com/profile/11917880603070744451noreply@blogger.comtag:blogger.com,1999:blog-5508107958494001609.post-37274192867674054482012-10-09T17:07:38.466-04:002012-10-09T17:07:38.466-04:00As always, you hit the nail on the head. It often ...As always, you hit the nail on the head. It often does matter which nurse you get at the infusion center and there can a significant difference in skills in addition to the caring part of the work. Since I am a regular at the infusion center, there are three to four more senior nurses who take care of me because some of the complications I have had. They are willing to keep the infusion rate very slow and take extra precaution, but it has been a process of learning and working together over a number of months. But you are right we patients always have to have our game on -- I am always alert and checking my pre-meds and the infusion to make sure things are being done according to plan. I have learned that participating my care is a must and letting my guard down is never an option.AutoimmuneGalhttps://www.blogger.com/profile/11917880603070744451noreply@blogger.comtag:blogger.com,1999:blog-5508107958494001609.post-50330354322514023222012-10-09T16:25:10.457-04:002012-10-09T16:25:10.457-04:00What a wonderful post, it made me feel all warm an...What a wonderful post, it made me feel all warm and fuzzy inside thinking about the doctors and nurses who made a difference for me. You've inspired me to write a post about it! It's on my list now. It's easy to forget to post about the positives too. :)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5508107958494001609.post-50059148697821412852012-10-09T15:47:46.219-04:002012-10-09T15:47:46.219-04:00This is an insightful post. I worked as an RN for ...This is an insightful post. I worked as an RN for 16 years (including doing infusions) before I went out on disability. I have also been in 3x for steroid infusions last winter and of course, have had many other interactions as a patient with nurses.<br /><br />Nurses can make all the difference in your experience as a patient. I had 2 different nurses when I went for my steroid infusions. It was like night and day. It probably isn't easy being my nurse at times because I am not only VERY educated about my illness, but just as educated about my treatment and how things should work because I am a nurse. But I am also very tolerant when it comes to missing IV's, things running late, etc. because I know how it can be. That being said, there was a difference in the care I got between the two nurses both in the humane/emotional aspect and the technical aspect and I especially found the technical aspect disconcerting because it was issues that I had to call to their attention (i.e.running the infusion longer than they were going to because I didn't tolerate it at the faster rate the first time).<br /><br />Fact is, nurses are all human as are doctors and that is why we as patients have to be on our game all the time and remember to thank them at the times when they do make us comfortable.Christine https://www.blogger.com/profile/09892346661528968954noreply@blogger.com